The LGA and ADASS are asking for the views of people who with learning disabilities and their families.

The Local Government Association (LGA) and the Association of Directors of Adult Social Services (ADASS) are writing some guidance and want to hear from people with a learning disability, autism or both and family carers.

This is part of the Transforming Care work.

The guidance is to help make sure that people with a learning disability, autism or both who display behaviour that challenges get good quality care and support in the community.

They want the guidance to:

• Help commissioners and providers work together as partners.

• Help commissioners to make sure they are working with providers that have the right values and skills.

• Help commissioners to make sure good providers are available to people in their local area so that people don’t have to live a long way from family and friends.

• Help commissioners to know what good services and good quality care and support providers look like.

Here is the information with some questions for you to answer.

Questions_feedback on toolkit

SeeAbility has supported over 1,200 special school children across England

SeeAbility has supported over 1,200 special school children across England, providing adjusted eye tests and collecting data. It’s the biggest global study actively reporting on the eye care needs of children with learning disabilities.

Of the children using the SeeAbility service over a four academic year period we have found, with the help of Dr Maggie Woodhouse’s support in analysing our data that:

  • Nearly half (47.5%) had a problem with their vision.
  • A third (31.7%) needed glasses.
  • Over four in ten (43.7%) had no history of any eye care.
  • Only 7% had ever used a community optician.

Of those children with a sight problem more than a quarter (28%) had a problem that was previously unknown to school or their parents

We are calling on NHS England to make wide reforms to community eye care for children and adults with learning disabilities and introduce adjusted eye tests in special schools.

We’re using the hashtag #EqualRightToSight on our social media platforms.

Click here for more information about our report

We have a ‘top tips’ bit on the website too to help direct people on getting better eye care information eg. easy read. Especially as parents may struggle to know where to go and get their child’s sight tested, and we also happy to write little pieces of advice for newsletters etc.

Also if anyone, individuals, organisations, wants to sign up to pledge your support on eye care reforms so we can keep ensuring NHS England know there remains real concern over lack of their action on this issue they can also do this on this link too.