Planning for the next 10 years of the NHS

Meetings about how people with a learning disability or autism will be included in the plan

People with a learning disability and people with autism are included as one of the important priorities for the NHS in the next 10 years.

NHS England are working with Learning Disability England to hold 7 meetings to talk about what needs to be in the plan.

The ideas for the plan will be based on the work so far and what people have said is important or needs to happen next.

The meetings will talk about the work that has happened so far on making health services better, Transforming Care, Learning from deaths reviews (LeDeR) and other important work.

We will talk about what has worked and what hasn’t, as well as the evidence from research or numbers.

Below you will find more details about these events:

If you would like to use the links in the document above to register for an event, please click here to download the word version.

Update: All events have been fully booked. We are sorry if you wanted to come to a meeting and were not able to get a place. We have a waiting list for all the others. NHS England has decided not to make the events bigger and there is not time to run anymore before the plan has to be written at the end of September.


LTP webinar on the 17th Sept 1-3pm

The NHS has been asked to set out a long-term plan for its future by Autumn 2018. This will involve setting out its ambitions for improvement over the next decade, and how it will meet these plans over the five years of the funding settlement.

As autism has been identified as one of the top clinical priorities for the NHS, we would like to invite you to take part in this webinar which is part of a wider conversation about how autism will be prioritised in the NHS England Long Term Plan.

To register, please use the following link:


NHS England have set up other ways of contributing:

discussion guide on developing the long term plan for the NHS, is available from NHS England. This guide is also available in easy read. The guide is intended to help stimulate ideas on three key themes – life stage, clinical priorities and enablers of improvement.

It highlights some of the key challenges and some questions that NHS England would encourage you to answer through their online feedback form.

You may choose to provide responses for every topic, or just the ones that are important to you or the group you work with feedback needs to be submitted by Thursday 30th September 2018.

NHS England ask that you fully complete the first page of the survey so that they know who they have heard from. If you have any questions, please email Long Term Plan Engagement Team:

If you prefer to view this information in a plain english format please click here

If you would like to see a update about this 10 year plan, please click here

Become a Trustee at Learning Disability England

Learning Disability England is looking for new Trustees to help run and guide the charity with the Representative Body.

We are looking for up to 6 new Trustees to join the Board of Trustees between October 2018 and October 2019.
We are planning for new Trustees to join over a year to help give a smooth handover. Our current Trustees have supported Learning Disability England since it started so have a lot to share with new people joining the Board.

We expect 3 Trustees will start later this year and another 3 in the middle of 2019.

The Representative Body and current Trustees have written an information pack that tells you about being a Trustee and the skills and experience we hope people might bring to the Board of Trustees.

You can download the information pack here and the application form here

Trustees information pack Final

If you want a Word version or this or have any questions please get in touch by e mail on or phone on 0300 201 0455


Possible appeal against the High Court decision on sleep-ins

The union, Unison have asked for permission to appeal against the decision that was made on what people should be paid for sleep ins when supporting people at nigh . The High Court decided in July that Mencap did not have to pay its staff National Minumum wage when they do a sleep in – this decision affected the law for everyone who is paid to do sleep ins or employ people.

Unison have asked for permission to appeal against this decision and challenge it (so it could change what people have to be paid)

You can find out more from Anthony Collins Solicitors page Here

We will share information as we get it

Find information on the original decision by the High Court – Here

Learning Disability England are part of the #solvesleepins alliance

Action to stop people dying early

On Monday the Care Minister Rt Hon Caroline Dinenage MP sent a written statement to the House of Commons about the Learning Disabilities Mortality Review (LeDeR) annual report recommendations published on 4th May 2018. The statement said the government are still working with NHS England on what they will do.

Learning Disability England’s Rep Body Co Chairs have written to the Minister telling her about the worry, frustration and anger lots of people feel that there is more delay in acting on the recommendations that can help people live good lives that do not end earlier than they should. They also tell her about some of the good work we know about that is working in partnership with people and their families to make a difference for good services and staying healthy.

The letter also includes a film clip from Jenny Carter, Lifetime member of Learning Disability England talking about self advocacy as an important part of making these changes.

Please see below the letter the LDE Representative Body have today sent to Rt Hon Caroline Dinenage MP

Letter RT Hon Caroline Dinenage MP

We also want to share and help connect up what you think is good and the government and NHS England should know about as they develop their action plan. If you have questions you want our members to ask the Minister or people working on this or tell us something you think is making a difference please tell us

The Learning Disability or Autism Leaders List is launched

Learning Disability England are part of a group working in partnership with the Guardian, Dimensions and the Voluntary Organisations Disability Group (VODG) to start this list of people with Learning disabilities or autism who are making a difference.

We know a lot of people are making things better in their area, for themselves and their family and friends or across the country. We are pleased to be working with other organisations to help celebrate and share the good work of people.

We hope this will help change attitudes and show people what people with Learning Disabilities or Autism do every day to make our communities and society better.

The Learning Disability and Autism Leaders’ List 2018 is the first national listing of people with learning disabilities and/or autism who are helping make things better for themselves and others.

Nominations are now open and close on August 27th

Details on how to nominate can be found by clicking on this link

Up to 60 winning stories will be included in the Leaders’ List.

There will be 4 categories:

  • changing communities
  • advocacy, policy and the media
  • sports, arts and entertainment
  • work and education

A group of judges who are experts by experience will choose the winners.

Two special winners will also be selected for the Young Leader (under the age of 30) and Lifetime Achievement awards.

Everybody who shares their story (or is nominated by someone else) will get a certificate thanking them for getting involved and celebrating their achievement.

The full list will be announced on 3rd December 2018, which is the International Day of Disabled people.

LDE webinar: “It’s MY Life” – Self-Advocacy for people with Learning Disabilities 

10.00 – 11.00, 22nd June 2018

We all know that people with learning disabilities should be more involved in planning the services they use; they should have the right to speak up for themselves and be involved in making decisions that affect them. But how do we ensure that their voices are heard? Read more  “LDE webinar: “It’s MY Life” – Self-Advocacy for people with Learning Disabilities “