Planning for the next 10 years of the NHS

Meetings about how people with a learning disability or autism will be included in the plan

People with a learning disability and people with autism are included as one of the important priorities for the NHS in the next 10 years.

NHS England are working with Learning Disability England to hold 7 meetings to talk about what needs to be in the plan.

The ideas for the plan will be based on the work so far and what people have said is important or needs to happen next.

The meetings will talk about the work that has happened so far on making health services better, Transforming Care, Learning from deaths reviews (LeDeR) and other important work.

We will talk about what has worked and what hasn’t, as well as the evidence from research or numbers.

Below you will find more details about these events:

If you would like to use the links in the document above to register for an event, please click here to download the word version.

Update: All events have been fully booked. We are sorry if you wanted to come to a meeting and were not able to get a place. We have a waiting list for all the others. NHS England has decided not to make the events bigger and there is not time to run anymore before the plan has to be written at the end of September.

 

LTP webinar on the 17th Sept 1-3pm

The NHS has been asked to set out a long-term plan for its future by Autumn 2018. This will involve setting out its ambitions for improvement over the next decade, and how it will meet these plans over the five years of the funding settlement.

As autism has been identified as one of the top clinical priorities for the NHS, we would like to invite you to take part in this webinar which is part of a wider conversation about how autism will be prioritised in the NHS England Long Term Plan.

To register, please use the following link: https://bit.ly/2oPxrZ2

 

NHS England have set up other ways of contributing:

discussion guide on developing the long term plan for the NHS, is available from NHS England. This guide is also available in easy read. The guide is intended to help stimulate ideas on three key themes – life stage, clinical priorities and enablers of improvement.

It highlights some of the key challenges and some questions that NHS England would encourage you to answer through their online feedback form.

You may choose to provide responses for every topic, or just the ones that are important to you or the group you work with feedback needs to be submitted by Thursday 30th September 2018.

NHS England ask that you fully complete the first page of the survey so that they know who they have heard from. If you have any questions, please email Long Term Plan Engagement Team: england.ltp@nhs.net

If you prefer to view this information in a plain english format please click here

If you would like to see a update about this 10 year plan, please click here

LDE webinar: “It’s MY Life” – Self-Advocacy for people with Learning Disabilities 

10.00 – 11.00, 22nd June 2018

We all know that people with learning disabilities should be more involved in planning the services they use; they should have the right to speak up for themselves and be involved in making decisions that affect them. But how do we ensure that their voices are heard? Read more  “LDE webinar: “It’s MY Life” – Self-Advocacy for people with Learning Disabilities “

LDE Webinar: Transgender support for adults with learning disabilities and/or autism

10.00 – 11.00, 11th May 2018

People with learning disabilities and/or autism, may be considering a transition from the gender they grew up with, to a gender role they feel more comfortable with. Indeed, the person may have made this transition. As it is the case with the general population, people with learning disabilities may be exposed to discrimination, abuse, ignorance and also faced with practical and emotional stresses linked with everyday life in their new gender identity.

The Webinar will focus on how people with learning disabilities and/or autism are supported to navigate these practical and emotional difficulties and signpost to networks that may benefit and support people further. The Webinar will also consider the accessibility of information and support to this group.

 

 

Michael Fullerton, Director of Quality and Clinical Care in CMG will present this Webinar.

Michael is a registered learning disability nurse and works individually with a number of people with learning disabilities and autism to support their sexual and gender identity. Michael, as a learning disability nurse, has a unique position of working in a clinical role within a learning disability provider organisation. As CMG support over 900 people, Michael is able to offer support to a significant number of people, including in relation to relationships and sexuality.

Michael has witnessed an increasing number of people who are trans men or trans women, or are confused, haven’t ‘come out’ and the psychological impact of the stress and distress for people can be immense. Michael is therefore keen to ensure the support people receive from CMG and other networks is as responsive as possible to assist people to feel comfortable with their gender identity and choices and just be able to get on with their lives.

Michael has received training via the Family Planning Association to educate people with learning disabilities in relation to sexuality and has been gaining knowledge and inspiration about supporting transgender from the Clare Project in Brighton, a mainstream Transgender Support group.

LDE Webinar: Advance – Opening the can

10.00 – 11.00, 27th April 2018

Rachel Fox (Customer Engagement Manager, Advance Housing and Support) and Claire Bates (founder of Supported Loving, Choice Support) discuss the importance of good support in making and maintaining relationships, focussing on relationships for people with learning disabilities. Claire will give an overview of the research behind the Supported Loving campaign and its work so far, while Rachel provides the perspective of an organisation passionate about putting it into practice – the successes, the challenges and overcoming barriers.

 

 

Rachel is the Customer Engagement Manager at Advance, providing housing, support and employment services to people with disabilities and mental health conditions. As a member of the Supported Loving Network, Advance supports the rights of people with learning disabilities to have loving relationships (and sex if they choose). Prior to working at Advance Rachel worked in a range of mental health settings and has a degree in Psychology.

Claire is the founder of Supported Loving, a national network and campaign which focuses on the rights of people with learning disabilities to have loving relationships (and sex if they choose). Claire works for a Choice Support for over 15 years, they are a charity that supports people with learning disabilities, both in the Quality team and also as a manager and support worker. Claire also works as a researcher at the University of Kent’s Tizard Centre conducting research on topics relating to sexuality and relationships for people with learning disabilities.

 

LDE Webinar: “Learn With Us – Working in Partnership with Family Carers” – a film and training resource.

10.00 – 11.00, 13th April 2018

A genuine and rewarding partnership between family carers and services requires good support and training for staff. “Learn With Us” is a film and training workshop designed to respond to that learning need. This beautifully produced 45-minute documentary gives remarkable and unusual insights into the experiences of family carers, and of the staff who support their relatives with learning disabilities. Interviews with family carers, support workers and their managers produce a stimulating and thought provoking narrative. Two role plays by professional actors highlight areas of conflict and difficulty. Our unique training resource provides all the materials required to facilitate a 3-hour workshop, using the film to generate discussion and with exercises and handouts to promote learning and effective partnership.

Presented by: Clare Palmer and Catherine Wordsworth

Clare is an Islington family carer, mother of Elinor who has learning disabilities. She has represented family carers for some years on Islington’s Learning Disabilities Partnership Board. She also has a social services training background, and it was that combination of experience which originally led her to propose the making of “Learn With Us” to Islington’s Learning and Development Team, which financed the film. It has been immensely exciting for her to work with other family carers and Centre 404 to produce this innovative training for support workers.

 

Catherine is the Family Involvement Officer for Centre 404, a North London based learning disabilities charity. She has been involved in the Learn With Us project since 2015, when she came on board as part of the team designing the training resource pack. She believes strongly that understanding the triangle of relationships is key to working in true partnership with families. Delivering the training with its inspiring group of co-trainers, comprising family carers and professionals, is one of the most rewarding parts of her job.

 

Understanding the key requirements of the GDPR

10.00 – 11.00, 2nd February 2018

Our next free webinar for LDE members is being presented by Helen Cookson. This is an hour-long introduction to GDPR with a particular focus on understanding the key requirements and demystifying the core principles of data protection.  Helen will look at the steps which organisations are expected to be taking to prepare for the implementation of the GDPR in May 2018 and help you understand some of the common pitfalls so that you can focus your action plan to most effect.

Helen is a senior associate in Trowers & Hamlins LLP’ Privacy and Information Law group, and also works within our Employment Team.   Helen advises public, third and private sector clients with a particular focus on social care clients and advises on a range of data protection, privacy, and freedom of information issues with a particular focus on the issues which most often arise in relation to employees, including subject access requests and data sharing.  She is a very experienced seminar speaker and often provides training on data protection issues.  In particular, she is one of the team leading on helping our clients gear up for the GDPR with the aim of taking a practical approach to the new law.

The 2018 edition of the Legal 500 (North West Employment) notes that she “is adept at advising on data protection issues linked to employment”.