Action to stop people dying early

On Monday the Care Minister Rt Hon Caroline Dinenage MP sent a written statement to the House of Commons about the Learning Disabilities Mortality Review (LeDeR) annual report recommendations published on 4th May 2018. The statement said the government are still working with NHS England on what they will do.

Learning Disability England’s Rep Body Co Chairs have written to the Minister telling her about the worry, frustration and anger lots of people feel that there is more delay in acting on the recommendations that can help people live good lives that do not end earlier than they should. They also tell her about some of the good work we know about that is working in partnership with people and their families to make a difference for good services and staying healthy.

The letter also includes a film clip from Jenny Carter, Lifetime member of Learning Disability England talking about self advocacy as an important part of making these changes.

Please see below the letter the LDE Representative Body have today sent to Rt Hon Caroline Dinenage MP

Letter RT Hon Caroline Dinenage MP

We also want to share and help connect up what you think is good and the government and NHS England should know about as they develop their action plan. If you have questions you want our members to ask the Minister or people working on this or tell us something you think is making a difference please tell us

The Learning Disability or Autism Leaders List is launched

Learning Disability England are part of a group working in partnership with the Guardian, Dimensions and the Voluntary Organisations Disability Group (VODG) to start this list of people with Learning disabilities or autism who are making a difference.

We know a lot of people are making things better in their area, for themselves and their family and friends or across the country. We are pleased to be working with other organisations to help celebrate and share the good work of people.

We hope this will help change attitudes and show people what people with Learning Disabilities or Autism do every day to make our communities and society better.

The Learning Disability and Autism Leaders’ List 2018 is the first national listing of people with learning disabilities and/or autism who are helping make things better for themselves and others.

Nominations are now open and close on August 27th

Details on how to nominate can be found by clicking on this link

Up to 60 winning stories will be included in the Leaders’ List.

There will be 4 categories:

  • changing communities
  • advocacy, policy and the media
  • sports, arts and entertainment
  • work and education

A group of judges who are experts by experience will choose the winners.

Two special winners will also be selected for the Young Leader (under the age of 30) and Lifetime Achievement awards.

Everybody who shares their story (or is nominated by someone else) will get a certificate thanking them for getting involved and celebrating their achievement.

The full list will be announced on 3rd December 2018, which is the International Day of Disabled people.