The Learning Disability or Autism Leaders List is launched

Learning Disability England are part of a group working in partnership with the Guardian, Dimensions and the Voluntary Organisations Disability Group (VODG) to start this list of people with Learning disabilities or autism who are making a difference.

We know a lot of people are making things better in their area, for themselves and their family and friends or across the country. We are pleased to be working with other organisations to help celebrate and share the good work of people.

We hope this will help change attitudes and show people what people with Learning Disabilities or Autism do every day to make our communities and society better.

The Learning Disability and Autism Leaders’ List 2018 is the first national listing of people with learning disabilities and/or autism who are helping make things better for themselves and others.

Nominations are now open and close on August 27th

Details on how to nominate can be found by clicking on this link

Up to 60 winning stories will be included in the Leaders’ List.

There will be 4 categories:

  • changing communities
  • advocacy, policy and the media
  • sports, arts and entertainment
  • work and education

A group of judges who are experts by experience will choose the winners.

Two special winners will also be selected for the Young Leader (under the age of 30) and Lifetime Achievement awards.

Everybody who shares their story (or is nominated by someone else) will get a certificate thanking them for getting involved and celebrating their achievement.

The full list will be announced on 3rd December 2018, which is the International Day of Disabled people.

LDE webinar: “It’s MY Life” – Self-Advocacy for people with Learning Disabilities 

10.00 – 11.00, 22nd June 2018

We all know that people with learning disabilities should be more involved in planning the services they use; they should have the right to speak up for themselves and be involved in making decisions that affect them. But how do we ensure that their voices are heard? Read more  “LDE webinar: “It’s MY Life” – Self-Advocacy for people with Learning Disabilities “

A Statement following the inquest into Danny’s death

People with learning disabilities and their families are sadly all too used to dealing with substandard support, a lack of choice, and professionals who refuse to listen to us. Neglect, arrogance and indifference are common themes in the recent inquests into the preventable deaths of Connor Sparrowhawk, Oliver McGowan and Danny Tozer. And this is shameful.

However, in Danny Tozer’s case, the account of his care that has emerged at his inquest is all the more shocking because it took place at one of Royal Mencap’s supported living facilities. The biggest and most powerful UK charity for people with learning disabilities, not only failed to protect Danny, it failed to provide him with the support and the life he deserved. What is worse, is that Royal Mencap’s approach at the inquest has been to blame Danny’s bereaved parents and to focus on his behaviour rather than failings in his support and care.

This inquest has highlighted the conflict of interest that Royal Mencap has in being a major provider of services whilst at the same time claiming to be an organisation that campaigns and lobbies on behalf of people with learning disabilities and their families. It should choose which it wishes to be.

There have been many unexpected deaths, serious injuries, and allegations of abuse in recent years , across many different services. The figures suggest that there is a wider problem within the sector and that support providers need to urgently review their safeguards and their culture. We need a new openness and willingness to share and learn from uncomfortable truths. The aim of preventing further deaths and injury must overcome any reticence in sharing the whole truth.