Resources about my rights and the law

Back to Coming out of lockdown for individuals and families

BIHR Reports on the Impact of of the Government’s response to the Covid-19 for the human rights of people with care and support needs. Includes easy read versions.

 Resources and guidance specifically for families, including FAQs about the Coronavirus law and emergency powers, from the Challenging Behaviour Foundation.

Online resource called My Own Front Door, particularly useful for families, which includes information and ‘livestreams’ on the Care Act Easements and Emergency Powers. From #RightfulLives

Briefings on coronavirus, the law and Human Rights from the British Institute of Human Rights.

Information about the extra help the government has put in place around paying bills, sick pay and benefit entitlements from Citizens Advice.

Resources for advocacy organisations and those who support self-advocates from Voiceability.

Our resources on Disabled people’s rights, DNAR  and Covid-19

 

 

 

Resources about my support

Back to Coming out of lockdown for individuals and families

 

Useful for everyone

 

 

Letter to social housing residents from the Minister of Housing – easy read

Technology start-up AutonoMe is offering a FREE version of their app to any person with a learning disability in the UK during the coronavirus outbreak. Read a press article about Autonome here

Resources for family members, support workers, social workers and OTs on Coronavirus and how that might affect people with learning disabilities or autistic people, from Social Care Institute for Excellence (SCIE)

Resources about the implications of Covid19 from Beacon (the advice service about NHS CHC), which has increased capacity to respond to queries about NHS Continuing Health Care.

Free Training on Coronavirus from Health Education England, aimed at health and social care workers. However, it is open to anyone. 

Grab Sheet about trauma from NWTDT and partners

Guidance on safeguarding adults during the outbreak from the British Association of Social Workers.

Up to date guidance and resources from Carers UK.

Information about the extra help the government has put in place around paying bills, sick pay and benefit entitlements from Citizens Advice.

 

For families

 

 

Resources for any families who are trying to home educate through the Coronavirus outbreak, including useful multi media resources for anyone about Covid 19, from The Sensory Projects.

Information and resources for SEND families from the Special Needs Jungle.

Information for autistic people and their families from the National Autistic Society.

Resources including information to help family carers plan with others to get the support they need during the current crisis, from Together Matters.

 

 

LGBT+ resources

 

 

From Eddy Phillips, Carl Shaw and David Gill:

Plain English LGBT+ Covid Guide

Easy Read LGBT+ Covid Guide

Easy Read Covid Guide for Trans and Non Binary People

 

 

 

What it means to come out of lockdown

Back to Coming out of lockdown for individuals and families

Wordless stories to help children returning to school from Books Beyond Words – easy read.

Schools re-opening: information relevant to children and young people with severe learning disabilities – an information sheet from the Challenging Behaviour Foundation.

Recovery, Re-introduction and Renewal: Safe and Successful Returns to School – a handbook from Whole School SEND designed to help schools and education settings through Covid-19 and beyond.

Mencap have published easy read guides about:

Coronavirus resource hub including audio and video resources, and a weekly news update, from Inclusion North.

Resources about face coverings

Back to Coming out of lockdown for individuals and families

   

A face covering is something which covers your nose and mouth. It doesn’t have to be a mask. It can be anything that covers your nose and mouth.

Some people do not have symptoms so they can spread Coronavirus without knowing.

Face coverings are to stop you from accidentally spreading the virus.

The government has made new rules about wearing face coverings in public places to help protect people from Coronavirus.

Some people do not have to wear a face covering for health reasons.

Gary Bourlet, our Membership and Engagement  Lead, has made a video blog to explain about wearing face coverings and the new rules. You can watch Gary’s VLOG here.

Care homes and face coverings poster

Video about wearing face coverings in shops – easy read. 

Disabled customers and rules about wearing masks in shops – easy read from The Equality and Human Rights Commission

The Disabled Persons Transport Advisory Committee (DPTAC) position statement on face covering exemptions

Illustrated guides on how to wear a mask from Big Leaf Foundation – easy read and several languages.

Exemption cards to explain why you aren’t wearing a mask from Photosymbols – easy read

Guidance about wearing face coverings from Mencap – easy read.

 

 

Disabled People’s Rights, DNAR and Covid19

Ward Cubicle 1

 

 

 

 

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Learning Disability England has joined voices with over 70 other disabled people’s organisations and allies in an Open Letter supporting a Statement about the rights of disabled people during Covid 19.

We are all concerned about recent media coverage and letters from GPs about DNAR.

You can read the response from Professor Stephen Powis, National Medical Director, NHS England and NHS Improvement and Ruth May, Chief Nursing Officer, NHS England and NHS Improvement to the Open Letter.

Baroness Campbell replied to this response. You can read Baroness Campbell’s reply here.

The Chair of the United Nations Committee on the Rights of Persons with Disabilities also issued a joint statement on persons with disabilities and Covid-19.

As a result of this lobbying, the Care Quality Commission, the Royal College of General Practitioners, the British Medical Association and the Care Providers Association issued a joint statement on advance care planning.

They said “it is unacceptable for advance care plans, with or without DNAR form completion, to be applied to groups of people of any description”.

VoiceAbility have created a template letter to raise concerns about restrictions on care where someone has received a DNAR letter from their GP or other professional.

The template can be changed to add your personal details.

We carried out a ‘snapshot’ survey at the end of April to find out the experiences of our members and DNAR during the pandemic. Read the Full Report and Easy Read here

Read the Case Studies some of our members gave us as part of the survey.

Watch a video here from Dudley Voices on Questions we all want to know the answers to when thinking about DNAR’s.

Learn more about your human rights in The British Institute of Human Rights hub here.

 

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Information for individuals and families

 

 

 

 

 

 

Here are some resources about the new guidance on wearing face coverings:

Gary Bourlet, Membership and Engagement Lead for LDE has made a video about face coverings and the new rules that come into effect on 24 July. Watch Gary’s video about face coverings here

Big Leaf Foundation have created illustrated guides on how to wear a face covering. These are available in several different languages.

Ace Anglia  have recorded an video interview with a Primary Care Learning Disability Liaison Nurse. The video includes questions about wearing face coverings

It’s Sew Easy offer ten free face covering patterns to make yourself

 

To help us understand the rules that have changed since the beginning of July, Mencap have published easy read guides about:

The government has published guidance on the re-opening of special schools and what this will mean for children.

Inclusion North have a hub on their website with resources, including video and audio. You can also download a weekly news update.

Cornwall People First have written a useful easy read guide about the easing of the lockdown restrictions and what they mean

The Minister for Housing has written a letter setting out the measures that are in place to support social housing residents during this next phase towards reopening society.

Eddy Phillips, Carl Shaw and David Gill have forwarded us some great LGBT+ resources they have put together that might be helpful. These are:

Plain English LGBT+ Covid Guide

Easy Read LGBT+ Covid Guide

Easy Read Covid Guide for Trans and Non Binary People

Social Care Institute for Excellence (SCIE) have a set of guides & resources for family members, support workers, social workers & OTs on Coronavirus and how that might affect people with learning disabilities or autistic people. You can see the SCIE guides and resources here

Beacon (the advice service about NHS CHC) has increased capacity to respond to queries about NHS Continuing Health Care and has produced resources about the implications of Covid19

GPs have been given guidance by NHS England about how to support their most ‘at risk’ patients. You can read the guidance and updates for GPs here

Together Matters has put together a range of useful resources and information, including information to help family carers plan with others to get the support they need during the current crisis. You can see the Together Matters resources here

NWTDT and partners have produced a useful Grab Sheet about trauma

The British Association of Social Workers has put out guidance on safeguarding during the outbreak. you can read their guidance for safeguarding adults during Covid 19 here

Be Human has a webpage for people and families to help share useful links, practical tips and ideas, including information about what people who manage their direct payments have put in place for themselves and their PA’s. Visit the Be Human web pages here

The Challenging Behaviour Foundation have put together a range of resources and guidance specifically for families, including FAQs about the Coronavirus law and emergency powers. See the resources from the Challenging Behaviour Foundation here. 

#RightfulLives have developed an online resource called My Own Front Door, particularly useful for families, which includes information and ‘livestreams’ on the Care Act Easements and Emergency Powers.  You can visit the My Own Front Door resources and livestreams here

British Institute of Human Rights have a webpage with briefings on coronavirus, the law and Human Rights. You can see the BIHR coronavirus resources here

The Learning Disability Professional Senate have put together two guides, one for families and one for self advocates. You can see the LD Senate resources for people with a learning disability here and the LD Senate resources for families here

Photosymbols have developed a new website just for Coronavirus information called Keep Safe, with lots of useful easy read resources. You can see the Keep Safe web resources here

The Sensory Projects have shared resources for any families who are trying to home educate through the Coronavirus outbreak. It includes useful multi media resources for anyone about Covid 19. You can see the Sensory Projects multi media resources here

Inclusive Communication Essex (ICE) have developed a range of resources, including easy read and resources to use with children. You can access the ICE easy read web resources here

The Special Needs Jungle are sharing all the information or resources they think will help SEND families. You can access the Special Needs Jungle coronavirus SEND resources here

The National Autistic Society has information for autistic people and their families. You can see the National Autistic Society coronavirus resources here

Carers UK are sharing the up to date guidance and resources on their web site. You can find the Carers UK resources here

Citizens Advice has useful information about the extra help the government has put in place around paying bills, sick pay and benefit entitlements. You can visit the Citizens Advice coronavirus help here

 

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Information for Organisations and people who employ their own Personal Assistants

 

 

 

 

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The Department of Health have issued easy read guidance on direct payments during the pandemic here

Big Leaf Foundation have created illustrated guides on how to wear a mask. These are available in several different languages.

The government guidance for social care includes guidance on residential, supported living and home care settings. You can read the government guidance for social care here.

The government has also published an easy read guide about the ethical framework for adult social care. These are rules to help make sure that decisions about care and support are made fairly.

The Local Government Association has provided guidance to commissioners about social care provider resilience during COVID-19. This is shared guidance to local authority commissioners from the Association of Directors of Adult Social Services (ADASS), the Local Government Association (LGA) and the Care Provider Alliance (CPA). You can read the Local Government Association guidance here.

Coronavirus emergency legislation: The Coronavirus Act has emergency measures & changes to the law including the Care Act & Mental Health Act & measures to allow more staff in health & social care. You can read more about what this means for the Care Act here.

Respond has written some information to help organisations and workers think about helping people keep safe whilst at home more. You can read Respond’s information here.

Voiceability have shared their guidance in the hope it will help other advocacy organisations and those who support self-advocates. You can see Voiceability’s resources for advocacy here.

NWTDT and partners have produced a useful Grab Sheet about trauma

ACAS have put together guidance for employers and employees specific to Coronavirus. You can find ACAS resources here.

In Control and Be Human held a webinar gathering for people on direct payments, personal budgets & personal health budgets to share practical tips during COVID-19. You can access the video recording here.

NCVO have put together a range of resources that might be useful for organisational members and family members who are carers or who help manage a family member’s Personal Budget. You can see NCVO’s resources here.

The Care Workers Charity (CWC) has set up an emergency fund to help support workers, including Personal Assistants, who need to take time off work due to Covid 19. You can find out more about the CWC Emergency Fund here.

Free Training on Coronavirus: Health Education England has on line training about Coronavirus for aimed at health and social care workers. However, it is open to anyone. Read more about the free Health Education England coronavirus training here.

The Office of the Public Guardian holds a register of everyone who has a lasting or enduring power of attorney (LPA and EPA), or who has a deputy acting for them. This can be searched by social care staff to find the contact details of those involved. Read the guidance here

 

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