DNAR Decisions and Human Rights: Workshop

About this Event

During Coronavirus some disabled people and older people have been told doctors will not restart their heart if they become very unwell.

This is a Do Not Attempt Resuscitation Order called a DNAR.

The CQC is investigating this.

We are running an online workshop for disabled and older people to find out more about their human rights.

We will be asking people to share their expereinces of decisions about DNARs.

The workshop is also for family and friends and community groups and advocates.

We will make a human rights reprt which you can use and will give the report to the CQC.

This session is being hosted by the British Institue of Human Rights.

This session is open to LDE Members and the public.

Coronavirus and people with learning disabilities – what do we know now?

About this Event

This workshop is open to people with learning disabilities, family members, and paid supporters; as well as people with responsibility for commissioning or delivering services and those in policy or development roles.

It will include input from self-advocates on people’s direct experiences, information on COVID-19 and people’s health, and the findings so far from the Coronavirus and people with learning disabilities research project (https://warwick.ac.uk/fac/soc/cedar/covid19-learningdisability )

The speakers include

  • Gary Bourlet from Learning Disability England
  • Annie Ferguson from PMLD Link
  • Chris Hatton from Manchester Metropolitan University
  • Richard Hastings from the University of Warwick

 

‘Everyday Matters’: working together with families

View the session recording HERE

 

About this event

For many support workers, building positive relationships with families is an important part of the job. Getting it right can make a huge difference to people’s lives.

Camphill Village Trust has been working in partnership with Centre 404 and Learn With Us to co-produce new training programme and interactive resource, ‘Everyday Matters’.

‘Everyday Matters’ introduces some key skills that help staff communicate effectively with families to help build trust and work in partnership.

This webinar gives a taster of the training and the resources, and talks about how and why it was developed and how you can get involved.

This webinar is aimed at support workers and staff from provider organisations. It may also be of interest to people who employ their own Personal Assistance through Direct Payments.

This webinar is for Learning Disability England members only. You can become a member for as little at £12 a year, click here to find out more.

 

Filling the gaps

View the session recording

 

See Sunderland People First’s presentation

See Ace Anglia’s presentation

About this Event

Filling The Gaps

Come and hear about the amazing work self advocacy groups have been doing during the pandemic to Fill the Gaps left by other services.

The Research Team at the Open University will introduce two new Reports: one on the role of Self advocacy during the pandemic; the other on the important part played by technology for people with learning disabilities during coronavirus.

Then you will hear directly from the groups about their work to support members and others.

Really important messages for the way we need to organise and fund if we are to support people with learning disabilities better in emergencies like this.

This is an open session and will be of interest to anyone with a learning disability or who works with people with learning disabilities.

Living through the COVID-19 and Lockdown

 

 

 

View the session recording HERE

 

 

View the presentation used HERE

 

About this Event

COVID 19 has been hard for everyone but harder for people with learning disabilities from Black and Minority Ethnic communities.

It is very important to hear the voices of people learning disabilities from those communities because:

• Information from the Government show more deaths of people with learning disabilities during COVID.

• But there are more deaths of people from BAME communities than we should expect.

• Research on All deaths from COVID-19 of people with learning disabilities 20% were from BAME groups.

• What this tells us is that more people with learning disabilities from BAME groups are dying from COVID 19 .

The Foundation for People with Learning Disabilities, Learning Disability England and SeeAbility say that:

• This is not right People should not have higher risk because they are from BAME groups.

• We wanted to find out why people with learning disabilities from BAME groups are more at risk .

• We wanted to find out what we can do better to protect people from BAME groups.

Where do we go from here?

We invited lots of people to talk about this:

• People with learning disabilities to find out what is going wrong.

• How people with learning disabilities are being supported .

• What people who offer support (providers) are already doing to help protect people from BAME groups.

• Learn from these examples of good support and tell others about it.

• We want to tell the Government and people that make the rules about what is good support.

Programme:

The day was co -chaired by Lola Young, Baroness of Hornsey, Member of the House of Lords and human rights campaigner ans Scott Watkin, BEM, Head of Engagement at SeeAbility.

We focused on two mains areas:

Listen & Think –where the voices of people who are from Black Minority Ethnic groups are heard.

Change & Act – an opportunity to share good practice and show examples of how we can work together.

We want to work together with people with learning disabilities and organisations to make change happen and make sure that everyone is kept safe in future.

 

DNAR decisions: Experience led Human Rights analysis

Find out more about the human rights of people you’re supporting and DNARs

About this Event

During Coronavirus some disabled people and older people have been told doctors will not restart their heart if they become very unwell.

This is a Do Not Attempt Resuscitation Order called a DNAR.

The CQC is investigating this.

We ran an online workshop for staff to find out more about what human rights law says should happen when supporting people, especially when faced with difficult decisions and discussions like DNARs.

We asked staff to share their experiences of decisions about DNARs.

The workshop was for people working in health and social care, this includes in hospital, community and residential services and home, and those in local authorities such as social workers.

We will make a human rights report which you can use and will give the report to the CQC.

This session was hosted by the British Institute of Human Rights (BIHR).

The session was supported by Turning Point, BIHR and is open to LDE Members and the public.

Webinar: Raising the Profile – PMLD Core & Essential Service Standards

 

 

View the webinar presentation here

 

About this Event

All providers of education, health and social care and support should be adapting and actively meeting the ‘PMLD’ standards when supporting children and adults with ‘profound and multiple learning disabilities’.

Likewise, the Standards are a tool to be used by families, commissioners and regulators when assessing what ‘good’ support looks like.

As we step into 2021, Achieve Together discusses how one adult social care provider has helped shape, and use the Standards to continually improve support, and ensure consistent benchmarking of the vision and approaches.

Among other advances, this has led to people with profound and multiple learning disabilities being more involved in self and peer advocacy.

Watch this webinar to learn more about this journey and the people involved.

This webinar is for anyone who is interested in the PMLD standards or thinking about how we work to make sure we are all being more inclusive.

Webinar: Decision-making and changing Covid-19 guidance

Back to Past webinars

View the recording here

 

 

 

 

Click here to get a copy of the slides used 

 

 

 

About this event

Alex Ruck Keene and Steve Broach from 39 Essex Chambers covered the basic principles of law underpinning decision making like the Mental Capacity Act and the current guidance including
• restrictions on people living with people shielding
• track & trace responsibilities and roles especially for supporters
• making individual decisions on risk visit and any activity that balances infection control & well being for example

The information was correct at the time of recording on 9.6.20

Webinar: Good Health and Annual Health Checks

Back to Past webinars

The recording can be watched here

 

 

The slides used in the webinar are here

 

 

 

Resources shared by participants and more information about what local areas are doing here.

About the event

The webinar was led by Skills for Care and Learning Disability England. It was building on their work with NDTi and VODG on a project to improve access to Annual Health Checks.

The session was focused on annual health checks and included some examples of how they can help people despite current Covid restrictions.