Information for Individuals and Families
Be Human has a webpage for people and families to help share useful links, practical tips and ideas, including information about what people who manage their direct payments have put in place for themselves and their PA’s. Visit the Be Human webpage here
The Challenging Behaviour Foundation have put together a range of resources and guidance specifically for families. See the information from Challenging Behaviour Foundation here
Photosymbols have developed a new website just for Coronavirus information called Keep Safe with lots of useful resources. You can visit the Keep Safe website here
Carers UK are sharing the up to date guidance and resources on their web site. You can find the Carers UK resources here
The Sensory Projects have shared resources for any families who are trying to home educate through the Coronavirus outbreak. It includes useful multi media resources for anyone about Covid19. You can see the Sensory Project multi media resources here
Citizens Advice has useful information about the extra help the government has put in place around paying bills, sick pay and benefit entitlements. You can see the Citizens Advice resources here
#RightfulLives have developed an online resource called My Own Front Door, particularly useful for families, which includes information on the Emergency Powers. You can visit the My Own Front Door webpages here
Inclusive Communication Essex (ICE) have developed a range of resources, including easy read and resources to use with children. You can visit the Essex ICE website here
The Learning Disability Professional Senate have put together two guides, one for families and one for self advocates. You can see the LD Senate resources for people with learning disabilities here and the LD Senate resources for families here
The National Autistic Society has information for autistic people and their families. You can see the National Autistic Society information here
The Special Needs Jungle are sharing all the information or resources they think will help SEND families. You can visit the Special Needs Jungle website here
British Institute of Human Rights have a webpage with briefings on Coronavirus, the law and Human Rights. You can see the British Institute of Human Rights resources here
GPs have been given guidance about how to support their most ‘at risk’ patients. You can read the guidance for GPs here
You can see a poster with some tips for good mental health here
Being prepared in case you need to go to hospital
An important preparation is to update your Hospital Passport. Some family members have worked with nurses and British Institute of Human Rights to make an emergency COVID-19 hospital passport that means medical professionals can get the information they need quickly. Here is a Covid-19 hospital passport template. You can find a presentation on how to fill in the template here.
Emergency Planning for families is very important at this time. The Dimensions family support team have created a presentation about emergency plans explaining why you might need an emergency plan and how to do it. You can also use their Dimensions templates (PDF) or editable Word version.
NHS England have released a clinical guide for front line staff to support the management of patients with a learning disability, autism or both during the coronavirus pandemic. It includes information on listening to people and their families or supporters, communication and decision making. You can read the NHS England guide for frontline staff here. You can read the easy read version here
Georgia Frith, a SaLT and widgit symbols have developed this easy read resource to help explain if someone has to go into hospital. You can read their easy read guide about going into hospital here
Seeability is part of a group of charities who have put together some advice for care staff around supporting people with sensory loss, learning disability and autism. The guidance offers advice on how to support people and communicate effectively. View it here.
Easy Read information
Public Health England have done an easy read version of their advice on keeping safe and what to do if unwell.
You can find the Public Health England easy read here
Public Health England have also made accessible versions of information on things like hand washing. There are also formats in audio, large print and BSL.
You can see all the Public Health England accessible formats here
NHS England have made an easy read version of the letter GPs are sending to their ‘at risk’ patients.
You can see the easy read letter for ‘at risk’ patients here
Inclusion North have done easy read information on the virus, including making a plan for if you need to stay at home (self isolation).
You can find Inclusion North’s resources here
Achieve Together have made an easy read guide about shielding for people who have received a letter from their GP saying they are vulnerable.
You can see their easy read guide about shielding here
Photosymbols have made a series of posters that explain how to stay safe, what to do if you feel unwell and what it means if you have other health conditions.
You can download the Photosymbols posters here
The Downs Syndrome Association has made an easy read guide for people with Downs Syndrome that includes information on what to do if you feel ill and social distancing.
You can find the Downs Syndrome Association resources here
Like shopping online? EasyRead.Info have made an easy read guide to shopping online here
Inclusion Europe are sharing information that is easy to read from different european countries. Remember the advice is from that country not the UK but it could be useful if you know people in other countries.
You can find information from Inclusion Europe here
Talking Mats have made easy read versions of World Health Organisation advice.
You can download the Talking Mats easy read resources here
Books Beyond Words are doing a series of picture stories including beating the virus andgood and bad days during lockdown. They are free to download.
You can see the Books Beyond Words picture books to download here
Mencap have made easy read information that includes information and a link to a film on handwashing and what we all need to do.
You can find resources from Mencap here
The Purple All Stars have made a Handwashing rap.
You can see the hand washing rap here
Opening Doors have made an easy read guide to making your plan for staying safe and staying in.
You can find the Opening Doors resources here
Leeds Teaching Hospitals Trust have made an easy read leaflet that explains having your temperature taken.
You can find their guide to having your temperature taken here
Mary’s Soap Story graphic: The big messages on keeping well are about washing your hands. Mary has shared her soap story with us:
The World Health Organisation have made some posters about managing stress and social distancing. You can see these below:
Information for Organisations and people who employ their own Personal Assistants
The government guidance for social care includes guidance on residential, supported living and home care settings. You can read the government guidance for social care here
In Control and Be Human held a webinar gathering for people on direct payments, personal budgets & personal health budgets to share practical tips during COVID-19. You can access the video recording here
NCVO have put together a range of resources that might be useful for organisational members and family members who are carers or who help manage a family member’s Personal Budget. You can see NCVO’s resources here
The Care Workers Charity (CWC) has set up an emergency fund to help support workers, including Personal Assistants, who need to take time off work due to Covid 19. You can find out more about the CWC emergency fund here
Free Training on Coronavirus: Health Education England has on line training about Coronavirus for aimed at health and social care workers. However, it is open to anyone. Read more about the Health Education England training here
Response has written some information to help organisations and workers think about helping people keep safe whilst at home more. You can read Response’s information here
Voiceability have shared their guidance in the hope it will help other advocacy organisations and those who support self-advocates. You can see Voiceability’s guidance here
The Local Government Association has provided guidance to commissioners about social care provider resilience during COVID-19. This is shared guidance to local authority commissioners from the Association of Directors of Adult Social Services (ADASS), the Local Government Association (LGA) and the Care Provider Alliance (CPA). You can read the Local Government Association guidance here.
ACAS have put together guidance for employers and employees specific to Coronavirus. You can find ACAS resources here.
Coronavirus emergency legislation: The Coronavirus bill has emergency measures & changes to the law including the Care Act & Mental Health Act & measures to allow more staff in health & social care. You can read more about the Coronavirus emergency legislation here