Learning Disability England promotes the action of members and partners on some health campaigns.
LDIS Benchmarking Project
Learning Disability Improvement Standards Benchmarking Project
Learning Disability England worked with some members and the NHS Benchmarking Network to share people with a learning disabilities’ experiences as part of the Improvement Standards exercise in 2025.
These member organisations – Skills for People, Ace Anglia and Dudley Voices for Choice – who faciliated focus groups with people with lived experience.
This was part of a project to shape the Learning Disability Improvement Standards – four standards designed to ensure consistent, high-quality care for individuals with learning disabilities and autism within the NHS.
LeDeR – Learning from Deaths
2025 has seen the publication of the LeDeR report delayed by a year. In response Autism Action, along with bereaved families, charities (including Learning Disability England) and campaigners have been calling for an overhaul of the system designed to learn from and prevent the premature deaths of autistic people and people with learning disabilities.
A letter with over 40 signatures has been sent to Health Secretary Wes Streeting on the 21st July, demanding action to get the LeDeR programme – ‘Learning from Lives and Deaths: people with a learning disability and autistic people’ back on track.
A response from NHS England explains they have delayed the publication of the latest LeDeR report due to practical data issues. They said the report is now with the Minister and is expected to be published in the autumn when Parliament returns. NHS England has also committed to releasing an accessible summary and an “Action from Learning” report alongside it.
We Cant Wait campaign
This is led by My Life My Choice and they are asking the NHS to put people with learning disabilities higher up NHS waiting lists.
You can find out more here.