Research and inquiries – sharing your Covid experiences

Inclusion Europe have worked on a report that shows how Covid-19 affected the rights of people with intellectual disabilities and their families.

It found segregation and discrimination in the European counties.

Read the full report here

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WHO European Regional Office together with European Disability Forum are leading a project on making public health messages on COVID-19 more inclusive for people with disabilities.

They want people to fill out a short survey to help them improve COVID-19 messages and make them more accessible.

Find out more and take the survey here

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The National Center for Mental Health or NCMH are doing a survey because they want to know how the covid-19 emergency is affecting people with a learning disability or autism. They want the government and services to know what life is like for people with a learning disability or autism at the moment.

Find out more and take the survey here

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The Carers Trust are carrying out a survey of unpaid carers to help its new campaign and find out:

  • what government support unpaid carers need to continue in their caring role
  • and what sort of reform of the social care system will support carers like you most effectively

Find out more and take the survey here

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Sense (part of the Complex Needs Consortium) has launched the #ForgottenFamilies campaign, highlighting the lack of support disabled adults and their families have been experiencing throughout the Coronavirus pandemic.

Families caring for disabled adults have been forgotten about and left to pick up the pieces, while much of the support they would usually access has stopped overnight, without warning.

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CQC and Health Watch England have launched a campaign called Because We All Care.
They are asking for your help to identify quality issues so they can address them. Read more and share your feedback with them about your experiences of health and social care services during COVID-19 here.

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Campaigners in West Sussex: People with direct experience or family members in West Sussex can join or share concerns with HACA (Harmed in Adult Care Alliance) to join a local campaign working for good care and transparency.

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The University of Hull is doing some research called ‘Caring from a Distance – using new & familiar means of keeping in touch with family and friends in care homes during COVID-19′.
They are asking people to take part by filling in their survey here

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The British Institute of Human Rights (BIHR)  is gathering evidence for two inquiries:

The Joint Committee on Human Rights (JCHR) inquiry into the (UK) Government’s response to COVID-19: human rights implications

And for those in Scotland, The Equalities and Human Rights Committee (EHRiC) at the Scottish Parliament inquiry into the impact of COVID-19 on Equalities and Human Rights.

They ask that you please complete their surveys below:

Survey to gather the experiences of those working in health and care during Covid-19. Click here.

Survey to gather the experiences of people accessing (or trying to access) health and care during Covid-19. Click here.

Survey to gather the experiences of campaigning and advocacy orgs, click here.

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Are you affected by restrictions on family visits to loved ones who are autistic and/or have learning disabilities in inpatient mental health settings? Please share your experiences to help The #Right2Home Campaign press NHS England for change.