On 4th June, Learning Disability England took part in a Parliamentary Reception hosted by the Adult Social Care All-Party Parliamentary Group (APPG).
The APPG is a cross party group of Parliamentarians, with an interest in social care, supported by a working group of organisations, including Learning Disability England, and a lived experience advisory group.
The reception was an opportunity for people who draw on care and support, work in care, or are involved in shaping social care policy to come together and share experiences.
James O’Rourke, Family and Friends Members Rep says of the APPG:
“Too often, people who need or provide care are sidelined in official reviews and consultations. If we want real progress, their voices must lead the way.
That’s why events like the APPG meeting matter. It’s not about adding another report to the pile – it’s about making sure policymakers hear the stories and hopes that should shape the future of care.”
The event also included contributions from MPs, local councillors, and sector organisations.
Speakers at the reception included Stephen Kinnock MP, who spoke in his capacity as Minister of State at the Department of Health and Social Care, and Sojan Joseph, a social worker and Labour councillor.
James O’Rourke and Gary Bourlet, Membership and Engagement Lead, attended on behalf of Learning Disability England.
They spoke to MPs and others at the event about what members tell us good care and support should look like and how the right support is such an important part of a good life.
As Gary explains, “I also handed Stephen Kinnock a copy of the Good Lives Framework and explained to him that it sets out what people with learning disabilities say they need to live good lives and how we can get there.”
James has said:
“It was an honour to stand alongside Gary Bourlet, the founder of, Learning Disability England as he shared our vision for a future where all people with learning disabilities lead fulfilling lives.
Gary personally handed Stephen Kinnock, Minister of State at the Department of Health and Social Care, the full Good Lives Framework – including the easy-read version – ensuring accessibility for everyone.
This framework is built on the voices, experiences, and dreams of people with learning disabilities, their families, and supporters. Now, it’s in the hands of decision-makers. Change is coming.”
The reception was one of many conversations happening about how adult social care could change in the future — and how to ensure people who use care and support are part of shaping that change.
Learning Disability England will continue to take part in the APPG’s work, alongside other members, to bring all kinds of members experiences into national conversations about social care.
As James says, “Social care isn’t a line item in a budget. It’s a lifeline. And real change starts by listening to those who live it.”