‘No research about us without us’
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People with a learning disability are often excluded from research and not enough is done to support people with learning disability to understand and take part in research.
![](https://www.learningdisabilityengland.org.uk/wp-content/uploads/2023/05/Working-Together-Services-2.png)
This project is made up of about 25 people including:
- Self-advocates with a learning disability
- Support workers
- National learning disability organisations (including Learning Disability England)
- Accessible communication experts
- Professional researchers
- The National Health Service
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They will examine the barriers stopping research from including people with a learning disability.
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It will be led by 2 people:
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Dr. Amy M. Russell
Researcher from the
University of Leeds
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Gary Bourlet
Membership and Engagement Lead at Learning Disability England
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This image above shows where the rest of the team is based in the country
The team made a poster about the project that we shared at the Seattle Club Conference in December 2023. You can see the poster here
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The video at the top of this page was made by Gary and Amy to explain more about the research.
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This easy-read application summary talks more about what the study aims to do.
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As one of the first stages of the research, the team wanted to look through the written evidence of what was happening in other research about inclusion.
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Researchers from The University of Warwick and Aston University had done some research we found interesting.
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We found there was no accessible version of this research, so we decided to make this easy read.
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To find out more about the project you can email Gary or Amy:
a.m.russell@leeds.ac.uk
gary.bourlet@ldengland.org.uk