Latest News

Latest News

Leasehold – The Hidden Costs

Guest Blog by Marie Lovell, Member of Learning Disability England

I was talking to my friend Chris who is hoping to make a documentary about leaseholds. 

He told me about many examples of people who have bought a flat or house, sometimes using ‘help to buy’ or ‘shared ownership’.

They then found they were stuck with expensive service charges or ground rent, or landlords who don’t do repairs.

Read more  “Leasehold – The Hidden Costs”

Good lives through supported housing

Gary Bourlet with Mark Johnson at the launch

Last week, some of us at Learning Disability England attended the launch event for a research project.

It was around Supported Housing for People with Learning Disabilities and Autistic People in England.

The research looked at the scale, size, scope, and cost of supported housing for people with learning disabilities and autistic people.

Read more: Good lives through supported housing

They hope this information will go onto inform and influence future government policy in relation to accommodation and supported housing.

Read more  “Good lives through supported housing”

What’s next for Social Care Future?

Social Care Future is a movement of people working together for change.

They believe we should all be able to live in a place we call home, with the people and things we love, in communities where we look out for one another and doing the things that matter to us.

They have put together their plan to achieve this vision.

Here is the easy-read version of their plan.

Here is the Plain-English version.

They’re focusing on building the conditions for the change we all want through storytelling, growing people power and forging new coalitions for change that will build bridges to the future.

Gary Bourlet, Learning Disability England’s Membership and Engagement Lead had a chat with Neil Crowther and Tricia Nicoll to find out more about their plans for the future.

Here you can watch the video of their full conversation:

Here you can watch a shorter version:

If you can find more updates from Social Care Future and find out about their upcoming events here.

Taking Action Together: A Good Lives Update

A blog from the Learning Disability England Membership and Engagement Lead’s

Its been a year and a half, 2 annual conferences and over 50 meetings with members and partners since we launched Good Lives.

As the Membership and Engagement Leads we wanted to share what has happening and what is next.

Its been amazing to see people coming together to get involved in Good Lives and using to it take action on our shared vision for a good life for people with learning disabilities.

Members have been doing all sorts of things:

  • United Pride Friends and U-Night Group shared vlogs about why the To Love and Be Loved chapter is so important, especially to LGBT+ people with a learning disability.
  • Bild for the Future have been thinking about what a chapter on health might look like. There will be a some opportunities to be part of that thinking so keep an eye out!

These are just a few examples, thank you to everyone who has been making Good Lives their own.

Read more  Taking Action Together: A Good Lives Update

“Treat us as people”

Today the Members reps sent a letter to all Learning Disability England members. 

The letter is about Sally Lewis and the inquest into her death.

Sally died because the people supporting her did not get her care right.

Sally was supported by Dimensions.  

Because of the mistakes they made Sally died from constipation.

The inquest found that she died partly because of neglect – this means that the people supporting her did not do their job. 

You can read the full letter we sent here

Read more  ““Treat us as people””

The Big Connect

What Rachael, one of our Membership and Engagement leads, has been up to this week. 

On Tuesday I travelled down to Bristol to connect with southern members and partners at the Big Connect, a More Than A Provider event.  

More than a Provider is collaborative of support providers who support and are taking action toward to Social Care Future’s Vision.  

It was great to see so many members there, including paid support rep Scott! 

In a workshop with United Response and Dimensions we talked about the My Vote, My Voice campaign encouraging people with a learning disability to take part in elections.

Read more  “The Big Connect”

Renting your own place

Learning Disability England has been working in partnership with researchers from the University of York and the University of Bristol, Riverside, Housing LIN and Stephen Lee Hodgkins on a research project.

The project team also has an advisory group of self-advocates with lived experience from York People First and My Life, My Choice.

People with learning disabilities have said that ‘a home‘ was one of the most important things about leading a good life.

This project is about finding better ways to support people with learning disabilities at the edges of social care into social and private rented housing.

The first stage of the research looked at options available for people at the edges of social care to live in ‘ordinary’ rented housing in the community.

This involved holding large roundtable events attended by lots of professionals and experts by experience.

Read more  “Renting your own place”

The Kings Coronation and Accessibility

The coronation of Charles III and Queen consort, Camilla is taking place on Saturday 6th May 2023, at Westminster Abbey. 

Learning Disability England was invited to attend an accessibility expert panel ahead of the coronation.

Wendy Burt, member of Learning Disability England and former member of the rep body attended as representative.

She has written a blog about her experience.

Read more  “The Kings Coronation and Accessibility”

‘The rot has to stop – look at the pattern of behaviour’

Simon Cramp

Last Friday, 4 people were convicted for the crimes they committed working at Whorlton Hall.

You can read about the convictions here.

The quote above is from Simon, a lifetime member of Learning Disability England.

He spoke about what any of us can say or do as we are reminded of yet another way people with learning disabilities and autistic people are being failed or actively harmed.

Read more  “‘The rot has to stop – look at the pattern of behaviour’”

The Hesley Group Report

“We need the right support at the right time from the right people, close to home”

Kate Chate – Rep and Family member

The Child Safeguarding Practice Review Panel have just published their second report about residential care settings in Doncaster run by the Hesley Group.

The reports found that in these homes between the 1st January 2018 and March 21st 2021 many children experienced neglect, abuse and were not having their needs met.

You can read both reports here.

Learning Disability England endorses the joint statement made by Dr Margaret Flynn, Dame Christine Lenehan and Dr Sheila Fish and held by the Coalition for Change.

Read the joint statement here

Read more  “The Hesley Group Report”