DNR: A guide for understanding your rights and challenging decisions
Learning Disability England has been working in partnership with Turning Point.
Latest News
Latest News
Learning and taking action during Covid 19
On 2 June 2020, CQC published data on deaths of people with a learning disability during the pandemic. This data shows an increase of 134% on the number of people dying that were reported to CQC compared to last year. You can read the standard and easy read report on their website
Read more “Learning and taking action during Covid 19”
People who count during Covid-19
By Gary Bourlet, Engagement Lead with Learning Disability England
Read more “People who count during Covid-19”
LDE Representative Body Elections 2020 – Voting is now open!
Update: Voting is now closed! Thank you to everyone who voted. Find out about your new representative body here.
Read more “LDE Representative Body Elections 2020 – Voting is now open!”
Leaders List 2020 are looking for judges
The Learning Disability and Autism Leaders’ List are looking for judges for 2020. The Leaders’ List is a partnership between Dimensions, Learning Disability England and VODG.
Read more “Leaders List 2020 are looking for judges”
Covid Voices – want to include yours?
An organisation called National Voices has created ‘Our Covid Voices’ which is a project which allows people with long-term conditions, disabilities and other health and care needs to share with the world what life is like for them right now. They can talk about their experiences of the UK under lockdown as they happen.
Read more “Covid Voices – want to include yours?”Challenge made over lack of CQC inspections during coronavirus pandemic
Learning Disability England have worked with 10 other organisations to jointly write to the Care Quality Commission (CQC) to raise their concerns about the decision to stop carrying out inspections of care homes and hospitals.
Human Rights – How can we unlock them?
Training session
10 – 11am 22nd May
(Zoom meeting)
This is being led by the British Institute of Human Rights and hosted by Learning Disability England in support of the Right 2 Home campaign
Information for individuals and families
Here are some resources about the new guidance on wearing face coverings:
Gary Bourlet, Membership and Engagement Lead for LDE has made a video about face coverings and the new rules that come into effect on 24 July. Watch Gary’s video about face coverings here
Big Leaf Foundation have created illustrated guides on how to wear a face covering. These are available in several different languages.
Ace Anglia have recorded an video interview with a Primary Care Learning Disability Liaison Nurse. The video includes questions about wearing face coverings
It’s Sew Easy offer ten free face covering patterns to make yourself
To help us understand the rules that have changed since the beginning of July, Mencap have published easy read guides about:
- Travelling safely
- Going to work safely
- Going to a funeral
- Top tips for keeping safe
- Advice for people who are shielding
The government has published guidance on the re-opening of special schools and what this will mean for children.
Inclusion North have a hub on their website with resources, including video and audio. You can also download a weekly news update.
Cornwall People First have written a useful easy read guide about the easing of the lockdown restrictions and what they mean
The Minister for Housing has written a letter setting out the measures that are in place to support social housing residents during this next phase towards reopening society.
Eddy Phillips, Carl Shaw and David Gill have forwarded us some great LGBT+ resources they have put together that might be helpful. These are:
Plain English LGBT+ Covid Guide
Easy Read Covid Guide for Trans and Non Binary People
Social Care Institute for Excellence (SCIE) have a set of guides & resources for family members, support workers, social workers & OTs on Coronavirus and how that might affect people with learning disabilities or autistic people. You can see the SCIE guides and resources here
Beacon (the advice service about NHS CHC) has increased capacity to respond to queries about NHS Continuing Health Care and has produced resources about the implications of Covid19
GPs have been given guidance by NHS England about how to support their most ‘at risk’ patients. You can read the guidance and updates for GPs here
Together Matters has put together a range of useful resources and information, including information to help family carers plan with others to get the support they need during the current crisis. You can see the Together Matters resources here
NWTDT and partners have produced a useful Grab Sheet about trauma
The British Association of Social Workers has put out guidance on safeguarding during the outbreak. you can read their guidance for safeguarding adults during Covid 19 here
Be Human has a webpage for people and families to help share useful links, practical tips and ideas, including information about what people who manage their direct payments have put in place for themselves and their PA’s. Visit the Be Human web pages here
The Challenging Behaviour Foundation have put together a range of resources and guidance specifically for families, including FAQs about the Coronavirus law and emergency powers. See the resources from the Challenging Behaviour Foundation here.
#RightfulLives have developed an online resource called My Own Front Door, particularly useful for families, which includes information and ‘livestreams’ on the Care Act Easements and Emergency Powers. You can visit the My Own Front Door resources and livestreams here
British Institute of Human Rights have a webpage with briefings on coronavirus, the law and Human Rights. You can see the BIHR coronavirus resources here
The Learning Disability Professional Senate have put together two guides, one for families and one for self advocates. You can see the LD Senate resources for people with a learning disability here and the LD Senate resources for families here
Photosymbols have developed a new website just for Coronavirus information called Keep Safe, with lots of useful easy read resources. You can see the Keep Safe web resources here
The Sensory Projects have shared resources for any families who are trying to home educate through the Coronavirus outbreak. It includes useful multi media resources for anyone about Covid 19. You can see the Sensory Projects multi media resources here
Inclusive Communication Essex (ICE) have developed a range of resources, including easy read and resources to use with children. You can access the ICE easy read web resources here
The Special Needs Jungle are sharing all the information or resources they think will help SEND families. You can access the Special Needs Jungle coronavirus SEND resources here
The National Autistic Society has information for autistic people and their families. You can see the National Autistic Society coronavirus resources here
Carers UK are sharing the up to date guidance and resources on their web site. You can find the Carers UK resources here
Citizens Advice has useful information about the extra help the government has put in place around paying bills, sick pay and benefit entitlements. You can visit the Citizens Advice coronavirus help here
Return to main Resources page here
Easy Read Information
The government has published easy read versions of their guide for people receiving direct payments and their guide to using direct payments during Coronavirus.
There is new easy read information from the government about their plan for getting back to normal after Coronavirus.
The government has also published an easy read guide about the ethical framework for adult social care. These are rules to help make sure that decisions about care and support are made fairly.
Stay Up Late Campaign have made a great news sheet which includes a cartoon story about lockdown and what we can and can’t do.
Eddy Phillips, Carl Shaw and David Gill have forwarded us some great LGBT+ resources they have put together that might be helpful. These are:
Plain English LGBT+ Covid Guide
Easy Read Covid Guide for Trans and Non Binary People
NHS England have made an easy read version of the letter GPs are sending to their ‘at risk’ patients.
You can see the NHS easy read letter for ‘at risk’ patients here
The NHS have 3 easy read posters on
If alerted you need to isolate
Getting tested if you have Corona Virus symptoms
The symptoms of Corona virus and getting tested
Inclusion North have done easy read information on the virus, including making a plan for if you need to stay at home (self isolation).
You can find Inclusion North’s easy read resources here
Achieve Together have made an easy read guide about shielding for people who have received a letter from their GP saying they are vulnerable. You can see their easy read guide about shielding here
Photosymbols have made a series of posters that explain how to stay safe, what to do if you feel unwell and what it means if you have other health conditions. You can download the Photosymbols posters here
The Downs Syndrome Association has made an easy read guide for people with Downs Syndrome that includes information on what to do if you feel ill and social distancing. You can find the Downs Syndrome Association resources here
Like shopping online? EasyRead.Info have made an easy read guide to shopping online here
Inclusion Europe are sharing information that is easy to read from different european countries. Remember the advice is from that country not the UK but it could be useful if you know people in other countries. You can find easy read information from Inclusion Europe here
Talking Mats have made easy read versions of World Health Organisation advice. You can download the Talking Mats easy read resource here
Books Beyond Words are doing a series of picture stories and illustrated guides to support people with learning disabilities and autism through the coronavirus pandemic.
Mencap have made an easy read guide to coronavirus. They have also published easy read guides about:
- What you can and can’t do under the new rules from the beginning of July.
- Travelling safely
- Going to work safely
- Going to a funeral
- Top tips for keeping safe
- Advice for people who are shielding
The Purple All Stars have made a Handwashing rap. You can watch the hand washing rap video here
Opening Doors have made an easy read guide to making your plan for staying safe and staying in. You can find the download the Opening Doors easy read guide here
Leeds Teaching Hospitals Trust have made an easy read leaflet that explains having your temperature taken. You can find their easy read guide to having your temperature taken here
Mary’s Soap Story graphic: The big messages on keeping well are about washing your hands. Mary has shared her soap story with us:
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The World Health Organisation have made some posters about managing stress and social distancing. You can see these below:
