Social Care Commission – Baroness Casey’s speech 

Baroness Casey is leading an inquiry into how Social Care works.

Last week Baroness Casey made a speech about her work on Social Care. 

In her speech Baroness Casey says the UK’s social care system is not fit for today’s society and needs major reform. 

Learning Disability England welcomes the points she makes in her speech about the system and how we as a society need to think about how everyone can be supported to live Good Lives

Read more  “Social Care Commission – Baroness Casey’s speech “

Speaking Up for Good Lives in Newham

James O’Rourke, Family and Friends Member Representative at Learning Disability England, has written a blog to speak about his recent experience speaking with councillors and social care staff in Newham about what a good life means for people with learning disabilities.

I was proud to represent Learning Disability England when I was invited to the London Borough of Newham Health and Adult Social Care Scrutiny Commission.

I went to talk to Councillors and social care senior staff about what a Good Life looks like for people with learning disabilities.

Read more  “Speaking Up for Good Lives in Newham”

“We need to be confident that fewer people will die in the future because of work that is happening today” 

The LeDeR report has now been published after being delayed and withdrawn in December. 

Read the report here

LeDeR could lead to real change. That is why representatives from Learning Disability England wrote to NHS England and the Minister, Dr Ahmed MP when the report was withdrawn. 

Read the original statement and letter here

As reps said at the time, “The reports are not just numbers or statistics. They are about real people who have died, often in ways that didn’t have to happen and every delay has felt like another barrier to change.” 

Read more  ““We need to be confident that fewer people will die in the future because of work that is happening today” “

Learning Delayed Is Learning Denied: Why the LeDeR Report Withdrawal Matters

NHS England has announced that the 2023 LeDeR report is being withdrawn and will be republished in January 2026.

LeDeR stands for Learning from Lives and Deaths of People with a Learning Disability and Autistic People

It looks at why people with a learning disability or autistic people die earlier than others and what can be learned to stop this happening.

Read more  “Learning Delayed Is Learning Denied: Why the LeDeR Report Withdrawal Matters”

Casey Commission Evidence Sessions 

An update for members from Sam Clark – Chief Executive at Learning Disability England.

In the last week, I went to two of the Casey Commission’s evidence sessions to speak up for members. 

This was unusual for Learning Disability England. Normally, members would take part themselves, but the Commission said only one person could attend.

The Rep Body Co-chairs and I agreed that I would go and represent all three voice groups. 

Read more  “Casey Commission Evidence Sessions “

Consultation Launched: Draft Down Syndrome Act Statutory Guidance

The Down Syndrome Act 2022 is a law that means the government has to write clear guidance for public services like health, social care, and education on how to meet the specific needs of people with Down syndrome in England. 

The Down Syndrome Association estimates there are 40,000 people with Down syndrome in the UK. 

The government has now launched a draft of this statutory guidance and a public consultation to get feedback.  

You can read the draft guidance here.

Read more  “Consultation Launched: Draft Down Syndrome Act Statutory Guidance”

Keeping People and Relationships at the Heart of Social Care

Responding to new report on the state of the adult social care workforce in England

The State of the Adult Social Care Sector and Workforce in England annual report from Skills for Care shares information about the people who work in adult social care – how many there are, what jobs they do, and the challenges employers are  facing.

The report for 2025 has just been published, read here.

It shows that the number of jobs in social care is growing and that the number of vacant posts has fallen to 7%.

That is still high though compared to other kinds of jobs like working in a shop.

The report also showed what many people already know, which is that lots of people are leaving their jobs – this can range from 42% turnover in some organisations to 14.5% in others.

Read more  “Keeping People and Relationships at the Heart of Social Care”