Speaking to…

My Vote My Voice’s Dr Mark Brookes MBE

Gary Bourlet, one of the Membership and Engagement Lead’s at Learning Disability England has been speaking with Mark Brookes about My Vote My Voice.

My Vote My Voice is a campaign developed by United Response, Dimensions, Mencap, Ambitious About Autism and the people who draw on our care and support.

Together they’re campaigning to remove voting barriers and raise awareness about people with learning disabilities and autistic people’s right to vote.

Dr Mark Brookes MBE is Advocacy Lead with Dimensions and helping to lead on their work for the campaign.

Gary speaks to Mark about what the campaign is all about and how you can get involved below.

Interview highlights
Interview – short version
Interview – full version

“Raising the voice of people with a learning disability”

Accessible Voting

I’m Mary Woodall and I am a self-advocate and member of Learning Disability England’s representative body.

As part of this work on the rep body I am Learning Disability England’s representative on the Social Care All Party Parliamentary group (APPG) lived experience advisory group.

The lived experience group brings together the voices of people with lived experience to have their say in policy change on adult social care.

For some of the meetings we have been speaking about accessible voting and getting people with learning disabilities involved in politics.

Read more  “Raising the voice of people with a learning disability”

Oliver McGowan Mandatory Training Code of Practice

As of 31st August 2023

43 organisations joined together to write to the minister about the lack of an accessible version of the consultation on the Oliver McGowan mandatory training code of practice.

The letter was to say it is not acceptable that people with learning disabilities do not have equal information or time to think about and respond to a code of practice on training that is about their lives.

We were asking that they can confirm when it will be available and that they will give an extension for responses so people with learning disabilities can be an equal part of the consultation.

You can read the letter here.

Update – 12th September 2023

Since we sent the letter we have seen 17 more organisations show their support.

The new version with these updated signatories is here.

Read more  Oliver McGowan Mandatory Training Code of Practice

Stopping people dying younger: Update from member reps 

Back in June, the Members reps sent a letter to all Learning Disability England members.

Read that letter here

The letter was about Sally Lewis and the inquest into her death.

Sally died because the people supporting her did not get her care right.

Dimensions was the organisation supporting Sally.

Since then, a few things have happened that the rep body wanted to tell members about.

Read more  Stopping people dying younger: Update from member reps “

Leasehold – The Hidden Costs

Guest Blog by Marie Lovell, Member of Learning Disability England

I was talking to my friend Chris who is hoping to make a documentary about leaseholds. 

He told me about many examples of people who have bought a flat or house, sometimes using ‘help to buy’ or ‘shared ownership’.

They then found they were stuck with expensive service charges or ground rent, or landlords who don’t do repairs.

Read more  “Leasehold – The Hidden Costs”

Good lives through supported housing

Gary Bourlet with Mark Johnson at the launch

Last week, some of us at Learning Disability England attended the launch event for a research project.

It was around Supported Housing for People with Learning Disabilities and Autistic People in England.

The research looked at the scale, size, scope, and cost of supported housing for people with learning disabilities and autistic people.

Read more: Good lives through supported housing

They hope this information will go onto inform and influence future government policy in relation to accommodation and supported housing.

Read more  “Good lives through supported housing”

What’s next for Social Care Future?

Social Care Future is a movement of people working together for change.

They believe we should all be able to live in a place we call home, with the people and things we love, in communities where we look out for one another and doing the things that matter to us.

They have put together their plan to achieve this vision.

Here is the easy-read version of their plan.

Here is the Plain-English version.

They’re focusing on building the conditions for the change we all want through storytelling, growing people power and forging new coalitions for change that will build bridges to the future.

Gary Bourlet, Learning Disability England’s Membership and Engagement Lead had a chat with Neil Crowther and Tricia Nicoll to find out more about their plans for the future.

Here you can watch the video of their full conversation:

Here you can watch a shorter version:

If you can find more updates from Social Care Future and find out about their upcoming events here.

Taking Action Together: A Good Lives Update

A blog from the Learning Disability England Membership and Engagement Lead’s

Its been a year and a half, 2 annual conferences and over 50 meetings with members and partners since we launched Good Lives.

As the Membership and Engagement Leads we wanted to share what has happening and what is next.

Its been amazing to see people coming together to get involved in Good Lives and using to it take action on our shared vision for a good life for people with learning disabilities.

Members have been doing all sorts of things:

  • United Pride Friends and U-Night Group shared vlogs about why the To Love and Be Loved chapter is so important, especially to LGBT+ people with a learning disability.
  • Bild for the Future have been thinking about what a chapter on health might look like. There will be a some opportunities to be part of that thinking so keep an eye out!

These are just a few examples, thank you to everyone who has been making Good Lives their own.

Read more  Taking Action Together: A Good Lives Update

“Treat us as people”

Today the Members reps sent a letter to all Learning Disability England members. 

The letter is about Sally Lewis and the inquest into her death.

Sally died because the people supporting her did not get her care right.

Sally was supported by Dimensions.  

Because of the mistakes they made Sally died from constipation.

The inquest found that she died partly because of neglect – this means that the people supporting her did not do their job. 

You can read the full letter we sent here

Read more  ““Treat us as people””

The Big Connect

What Rachael, one of our Membership and Engagement leads, has been up to this week. 

On Tuesday I travelled down to Bristol to connect with southern members and partners at the Big Connect, a More Than A Provider event.  

More than a Provider is collaborative of support providers who support and are taking action toward to Social Care Future’s Vision.  

It was great to see so many members there, including paid support rep Scott! 

In a workshop with United Response and Dimensions we talked about the My Vote, My Voice campaign encouraging people with a learning disability to take part in elections.

Read more  “The Big Connect”