World Sight Day 2022

Last Thursday was World Sight Day.

This guest blog is by SeeAbility’s eye care champion team, Lance Campbell, Joanne Kennedy, Rebecca Lunness, Grace McGill.

We are eye care champions.

We are four people with learning disabilities, autism or sight loss.

Everyone with a learning disability needs good eye care.

Read more  “World Sight Day 2022”

Providing the right support in challenging times: 3 perspectives

The cost of living crisis has not just been affecting individual members and their families.

Businesses, including support providers, have also been facing an increase in bills and costs when budgets are already tight.

Paid supporter members have been talking about the impact of the financial pressures they are under.

And the things they are doing to help make Good Lives, and particularly the chapter on the Right Support, a reality in difficult times.

Read more  “Providing the right support in challenging times: 3 perspectives”

Ethnicity and Difference in Health and Care

Do you have a learning disability?

Are you from a minority ethnic background?

Would you like to take part in some work to help make care better for people from minority ethnic groups with a learning disability?

We are looking for people to take part in a session to share what you think.

Read more  “Ethnicity and Difference in Health and Care”

We are looking for people to take part in a session to share what you think.

Read more  “Ethnicity and Difference in Health and Care”

Learning Disability and Autism Leaders’ List 2022

Blog by

Gary Bourlet and Dr Mark Brookes

The Learning Disability and Autism Leaders’ List is all about celebrating the achievements of people with learning disabilities and autistic people.

As well as an award, it is a national recognition of achievement.

The winners’ stories are shared nationally, and they receive a certificate, celebration pack and VIP invite to a celebration event.

The awards are run by Dimensions, in partnership with Learning Disability England and Voluntary Organisations Disability Group (VODG).

We have been both been judges for the Leaders’ List and won awards for our work as self-advocacy leaders.

(Mark made it onto the Leaders List and Gary on the Shaw Trust Disability Power 100, celebrating influential disabled people in the UK.)

Read more  “Learning Disability and Autism Leaders’ List 2022”

Another chance to share the impact of coronavirus

The UK research on the impact of Coronavirus on people with learning disabilities is asking people what life is like now.

You can read more about the research here

The research has some extra funding to find out how Coronavirus is affecting people’s lives now.

If you were interviewed in 2020 and 2021 they will be in touch again soon.

Read more  “Another chance to share the impact of coronavirus”

Where I Want to Live

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Blog by Louise Keevil, founding trustee and Acting CEO of Where I Want to Live

Chapter 1 of Good Lives: Building Change Together is about ‘A Home’.

And the importance of everyone having a choice about where they live and who they live with.

You may know that at Where I Want to Live we share this vision of a country where adults with learning disabilities have choice about where and how they live. 

We are taking steps towards this and the first thing we are doing is creating a toolkit that lots of people, who are aged between 18 and 35 years, can use.  

The toolkit starts by taking us back to basics and finding out what people actually want.

Read more  “Where I Want to Live”

Co-chairs statement: Ukraine

Yesterday we heard about how some disabled people are living in Ukraine.

Through the news reports we saw the institutions people are living in and the kinds of support some people get.

Like a lot of people, we were shocked and upset.

We want everyone to be valued, supported and belong in their community.

Read more  “Co-chairs statement: Ukraine”

Good Lives: Chapter 4 ‘To love and be loved’

Chapter 4 of Good Lives is all about people with learning disabilities having the opportunity to love and be loved.

There has been lots of interest in the chapter and many organisations have shown their support.

Read more  “Good Lives: Chapter 4 ‘To love and be loved’”

Power, a home and Good Lives

Alex Fox OBE, Chief Executive of the Mayday Trust and formerly Chief Executive of Shared Lives Plus, has written a blog.

It is about Good Lives, power and homelessness.

Alex talks about power.

Who has it, who is willing to share it, and who needs to take it.

And how this plays a part in making Good Lives a reality.

Alex talks particularly about Chapter 1: A home.

Read more  “Power, a home and Good Lives”

Reporting discrimination and failure – it’s time for accountability and change

Last week Kings College London and the NHS published the LeDeR report for 2021-22.

You can read the report here

You can read the easy read version here

The annual LeDeR report gives the statistics and findings from NHS reviews following the deaths of people with a learning disability.

This year’s report shows that people with learning disabilities are dying on average 22 years younger than in the general population.

Read more  “Reporting discrimination and failure – it’s time for accountability and change”