Helping to make self-advocacy stronger

We are starting our work on this by

  • Helping to find and share evidence on what difference self advocacy makes
  • Connecting self advocates and sharing information on what self advocacy groups there are
  • Supporting a self-advocacy movement working towards improving health through rights.


We have had help from the Academics Network to start this part of our work.

Jan Walmsley has done a summary of what we know about self advocacy from what self advocates and researchers have said

You can see that here

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Jan also started a list of the research on self-advocacy and what difference it makes. We are sharing this so everyone can share what they know about evidence and impact to help make arguments for self-advocacy or help people (like funders) understand it.

You can download that here


Connecting people – list of self advocacy groups in England

Here is a list of all the self advocacy groups in England in December 2018. – click here to download list

It has public contact details that the researchers could find

It was Barod from Wales who made this list and gave it to Learning Disability England to host

Barod are a social entrerprise from Wales that does research and training.

We will update the list at least once a year.

If you think something is wrong or missing please e mail us on


Working together

The North West hosted with us a national self-advocacy convention alongside their regular conference so people from all over England came to build networks and share ideas.  This is part of our work on helping self-advocacy be strong.

You can all about that convention here Link


Sharing Self-Advocacy Best Practice sessions

RTR helped us fund a few sessions to help self-advocacy groups around the country connect with each other and share what they are proud of. You can see some of the presentations here.



At learning Disability England, we want to work with all our members to get their voices heard and to tell people what is important to them.

This page tells you about being a spokesperson.


Health Through Rights – Self Advocacy as a Social Movement

Learning Disability England is working with 5 self-advocacy or human rights organisations as 1 of 7 social movements for better health that Nesta is supporting over the next year.

You can read more about our work here.