COVID 19 Vaccines Campaign – Update and reply from JCVI

On the 18th of December, the JCVI replied to the Open Letter that Learning Disability England and partners sent to them in November.
Stronger, Louder, Together!

On the 18th of December, the JCVI replied to the Open Letter that Learning Disability England and partners sent to them in November.

Ian Davies and Chris Hatton have written to Jeremy Hunt, the Chair of the Health and Social Care House of Commons Select Committee and Greg Clark , the Chair of the Science and Technology House of Commons Select Committee.
Ian Davies is a self-advocate and founding member of Northamptonshire People First.
Chris Hatton is Professor of Social Care at Manchester Metropolitan University.

On 22 December Scott Watkin, Co Chair of Learning Disability England’s Representative Body, appeared on Good Morning Britain.
The government have changed the rules since Gary wrote this blog. We have updated the links where the rules have changed.
The new government rules include

Work on Good Lives began in 2020, when a group of 40 self advocates came together in Birmingham.
Find out more about the work in 2020 here
They spoke about what it will take for everyone with learning disabilities to be able to live their good life.

Since then, we have heard from so many people and their families about what they want and need to live well.

This formed the base of the Good Lives Framework and its seven chapters (LINK)
The framework is there to start a debate and give ideas for action.

But Good Lives is more than just a framework – it is a vision and a goal that we can all aim for.
Good Lives focuses on hope, solutions and highlights what we all stand for.
Though of course we recognise and respect the many challenges people face and the failings – Good Lives does not ignore those but uses them as a reason to keep acting and expecting more.

Learning Disability England hosts Good Lives but do not control it. It belongs to the community.

You can hear lots more about Good Lives by watching this video.
Every two weeks since the start of lockdown Learning Disability England has held a zoom session for self-advocacy, family and community organisations.
Read more “Self-Advocacy and Family Peer Support Sessions helping people to be ‘more resilient’”
Guest VLOG from Sarah Maguire, Chair of the Trustees for Learning Disability England and Chief Executive of Choice Support.

Video blog (VLOG) from Gary Bourlet, Membership and Engagement lead and self advocate.

Learning Disability England has been working with Christine Towers at Together Matters to put together a short paper that shares some of the things families have said about what has happened to them since March.